Sunday, January 25, 2009

1:30AM Sunday, January 25th Stephen's diastolic number has remained in the 40's today. At one point, it went up to the 60's. The systolic number was high today; it was in the 160's. The doctors may choose to use Lisinopril again to help lower this number? They may do an ECHO of his heart tomorrow to see how things are looking.
One of the doctor's will check with a radiologist to see if it's possible to do an ultrasound on Stephen's neck to get a better picture of the arteries running along the path where a tracheostomy would be placed. Also a doctor will check with an E.N.T. here to see if there are any new procedures available for tracheostomies.
Stephen's stomach size has decreased! They are still saying it contains air, no blockages. They have started feeding him a formula that is very elemental in make up to see how his body will react. They are slowly increasing the amount given per hour in increments of 5ccs per day or as tolerated. (Today we reached 10ccs per hour.) This same formula was given to him as an infant when they discovered a similar condition inside his stomach when performing bilateral hernia surgery. The formula had agreed with his system back then. This is our hope now.
Please pray that it will work for him. The goal is to get his system moving again and that the remaining air in his stomach will be pushed out by the food. When his stomach returns to normal size, this should also help his lungs. - Myra

1 comment:

  1. I found out today that Stephen has been sick and I am so glad I found this page to follow his progress. Stephen is in my family and my prayers. Stay strong! :]
    <3 Hannah

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